Not a creature was stirring

Did I use this title before? I think it was a year ago that it was last used because of the calm and quiet right after the holidays. For us, the quiet is quite welcome as that means there is nothing wrong on the "health" part of our family. Greg's lung functions are still in the high 70's and he has hit his all time high a few times in the last couple of months. His next transplant clinic appointment is in January with no future bronchoscopy planned at this time. Just the normal routine for this visit - CT scan, physical, blood tests, long wait to talk to the transplant team, and then after hours of waiting for the transplant team, a 5-minute conversation with them before heading home. (smile)

It is nice to not have the worry of medications and illness on our minds at this moment. Yes, he is still on medications but nothing has changed for a while so this is a status quo time for us. Of course, I always get nervous when things get quiet. This is normal for any caregiver and loved one of someone with an illness. You try to enjoy the "down time" but fear that this time can and will change in the blink of an eye. So, part of you stays on guard, never truly allowing yourself to relax. It is a sad reality of life with a CF and post-transplant person in your life but it does get easier as time goes on. It is important though to never lose site of how valuable these times truly are - for you never know how long they will last.